A Resolution to Be Heard

Have you set your resolutions for the New Year? Each year, many of us draft that all-important list, crossing our fingers that we’ll tackle those bad habits or conquer those important goals as we make it a part of our annual mission for the new year. Well, we’d like to suggest one to add to your list. It’s certainly on ours here at EB Resource and Hollister Wound Care.

Make yourself heard about EB in 2014…now more than ever.

Whether you’ve been a steady voice in the community for many years, raising awareness or research dollars or if you’ve never shared a thing with others about this little-known disease, the New Year marks a new opportunity to do so. We urge anyone reading this to consider adding EB advocacy to your list of goals. And if you’ve been doing that, a very big thank you and we hope that you’ll continue to be an active part of this community. Ways to do this include speaking up where you can about EB, taking part in awareness or fundraising activities and showing your support for those who are participating in EB events.

For many of us, EB advocacy has become a way of life, and that’s typically the case for anyone diagnosed with EB, parents of a child who is diagnosed or invaluable friends and loved ones within that inner circle supporting an EB family. But no matter how much any of us do, it always feels like we can do more, doesn’t it? It always feels like there’s one more family we can reach out to, one more call we can make, and one more tweet we can send.

As many prepare to settle in for holidays that bring family and friends together, sometimes from great distances, we want to encourage you to take this time to be thankful for those friends and family and look ahead to 2014 as a year for possibilities, as a year for being proactive, for achieving whatever it is you want to accomplish. We simply urge you to add to that list a broader, more passionate role for raising awareness about EB which includes educating others and encouraging them to make a difference in their own way.