It’s hard to believe that EB Awareness Week is only two months away. Have you begun making plans to initiate any fundraisers or EB awareness events in your community for later this year? We’ve rounded up the list so far of events taking place both during this special national awareness week, and also during the remainder of the year.
If you know of any additional events being held this fall or early winter, please let us know. You can email me at firstname.lastname@example.org or let us know in the comments on our blog or Facebook and Twitter pages. We appreciate you helping us spread the word about the great ways people are educating others about EB.
Currently, these are some events to be aware of taking place later this year.
First Annual Butterfly 5K (Lore City, OH)
Those in the Buckeye State can come out for the debut of this special 5K event in honor of Hannah Blake, which starts at 10 a.m. Saturday, Sept. 20 in Salt Fork State Park, located at 14755 Cadiz Rd. This promises to be a fun family event with music, food, raffles and a 5K open to runners, walkers, as well as those with strollers and wheelchairs, too. For more information, click on this event link.
16th Annual DebRA of America Benefit (New York, NY)
This event to celebrate the official kickoff of National EB Awareness Week is scheduled for 7:30 p.m. to 10:30 p.m. Wednesday, Oct. 22 at the B.B. King Blues Club, located at 257 W. 42nd St. The evening will feature casino games with proceeds to benefit the organization’s various programs. For more information, click on this event link.
TCS New York City Marathon, Team DebRA (New York, NY)
Show your support by raising funds or participating in the world’s largest marathon as part of Team DebRA. It will take place on Sunday, Nov. 2. All proceeds benefit DebRA of America. Kudos to this year’s list of participants so far – click here for a peek at that list. For more information, click on this event link.