EB Happenings This Fall

Autumn is almost here, and this season, a variety of events are planned to raise EB awareness and research or resource dollars to support patients and families impacted by the disease. Here are some scheduled events or ongoing campaigns, as well as links where you can get additional information should you wish to get involved or lend your support. If you know of other events planned during the remainder of 2017, please let us know. You can email me at leslie.rader@hollister.com.

  • 7th Annual Night of Discovery (Long Beach, CA) – Indulge in a special evening ‘under the sea’ to benefit EB Research Partnership hosted by Aquarium of the Pacific 7 p.m. to 10 p.m. Saturday, September 23. This year’s theme is “Lighting a Path Towards a Cure,” and will include cocktails, dinner and an auction. For more information and to buy tickets, click here.
  • TEAM DEBRA at Bank of America Chicago Marathon (Chicago, IL) – Lace up the sneakers or support the existing crew of participants hitting the pavement in Chicago’s Grant Park on Sunday, October 8. Runners from all 50 states and over 100 countries will be taking part. Runners start at 7:30 a.m., 8 a.m. and 8:35 a.m. TEAM DEBRA proceeds will benefit debra of America. For more information, click here.
  • 19th Annual debra of America Benefit (New York City, NY) – Come out for this yearly debra fundraiser being hosted by Guastavino’s on Thursday, October 26. Event runs 6 p.m. to 10 p.m. and will include cocktails, hors d’ oeuvres, a silent auction and a seated dinner. For more information and to buy tickets, click here.
  • Debra Inaugural EB at TPC (Duluth, GA) – Tee up for a good cause at the debut of this benefit golf tournament at Sugarloaf Golf Club Monday, November 13. Registration, breakfast and driving range begin at 8 a.m. with shotgun start at 11 a.m. Take part on the links or attend the post-tournament reception. For more information, click here.
  • Prevail Activewear EB Fundraiser (Online) – Browse a new line of active wear launched by actor and fitness buff Josh Brolin and wife Kathryn and support EB families in the process as part of this Limited Time Offer. Fifty percent of the proceeds of Prevail Activewear will go directly to St. Jude’s Children’s Research Hospital and the Epidermolysis Bullosa Medical Research Foundation. For a closer look at this new clothing line, click here.

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