We’re not even two weeks into the new year and already we’re raring to go to promote any future EB awareness events or fundraisers that we’ve learned about. The following events are currently listed on the DebRA website, where additional information can be found on either the local events page or DebRA-hosted events page. Proceeds from each of these events will go toward DebRA’s various programs and services to support EB families as well as research for treatments and a cure.
If you know of any other events taking place during the first half of 2014 to benefit any EB-focused organization, EB support program or individual or family directly impacted by EB, please let us know. You can email firstname.lastname@example.org or leave a comment on the blog or at Facebook or Twitter. And we’ll be sure to help spread the word, too!
“TEAM DEBRA” at the Florida Disney Half Marathon (Orlando, FL)
This year, there will be the debut of a TEAM DebRA taking part in the event held Saturday, January 11 at Walt Disney World Epcot Center.
Cure 4 Cole 2 (Jacksonville Beach, FL)
This two-day musical event takes place Saturday, January 25 and Sunday, January 26 at the Landshark Café, 1728 3rd St. N. This second annual event features performances from a dozen bands, including Celinda Pink and The Music Factory and The Drifters, and also includes an auction of donated musical instruments.
3rd Annual Rafi’s Run Celebrating Rafi Kopelan (New York, NY)
This popular DebRA of America fundraiser is scheduled for Sunday, March. 9 at 10 a.m. in Riverside Park, 103rd St. Additional details about registration and other happenings at the benefit will be posted soon.
“TEAM DEBRA” at the NYC Half Marathon (New York, NY)
Supporters can inquire about participating, sponsoring or coming out to volunteer or cheer on those taking part in this unique 13.1 mile trek through the Big Apple on Sunday, March 16.
“TEAM DEBRA” at the 16th Annual Flying Pig Marathon (Cincinnati, OH)
This race, scheduled for Saturday, May 3 and Sunday, May 4, is a qualifying race for the Boston Marathon and offers over 10 events including the marathon, half-marathon, 10K, 5K, 4-person relay, kids’ events and more.