With EB Awareness Week not far off in the distance, we thought it was a good time to share news of any EB events we have learned of taking place later this fall. If you know of any others, please feel free to let us know here on the blog page or in our Facebook community so we can help support these individuals and families planning them. Thank you!
You may also email me any of the event details at firstname.lastname@example.org. As always, we’ll do our part to help get the word out to others about it.
Wicked Hot Run 5K Walk/Run (Murrells Inlet, SC)
This event is scheduled for Sunday, Sept. 8 at Huntington Beach State Park, located at 16148 Ocean Hwy. The family run offers participants three types of terrain including forest trails, paved roads and sand, with a portion of proceeds to benefit DebRA of America. For more information, click on this event link.
MW Foundation and DebRA Tennis Pro-Am (Queens, NY)
The inaugural MW Foundation event is scheduled for Wednesday, Aug. 28 at West Side Tennis Club, located at 1 Tennis Place. Proceeds from this inaugural fundraiser featuring former #1 tennis player in the world Mats Wilander will benefit DebRA of America. During the event, participants will get to play with former and current tennis pros and watch a professional exhibition match. For more information, click on this event link.
15th Annual DebRA of America Benefit at MOMA (New York, NY)
This event kicks off National EB Awareness Week on Thursday, Oct. 24 and features silent and live auctions, live music and a private viewing of the 5th Floor painting and sculpture galleries where Van Gogh’s The Starry Night and hundreds of other famous paintings hang. Proceeds benefit DebRA of America. For more information, click on this event link.
2013 Medtronic Twin Cities Marathon Weekend (Minneapolis, MN)
The Jackson Gabriel Silver Foundation is currently recruiting for its team as part of a weekend-long array of events Friday through Sunday, Oct. 4-6 including a marathon, 10-mile, 10K and 5K. Team JGSF will be running to support the work of University of Minnesota EB researcher Dr. Jakub Tolar. If you would like take part as a member of the team or get involved in some way, email email@example.com. Proceeds will benefit DebRA. For more information about this and other events for the organization, click on this event link.
Frontiers Day Fundraiser (Paris, AR)
This event coincides with the 33rd Annual Mt. Magazine Frontier Days Festival held in October and features a Civil War re-enactment. The EB event will be held Saturday, Oct. 5 at the Logan County Fairgrounds, 301 W. Walnut. There will be a DebRA booth with information about EB and raffles, giveaways and a special silent auction of handcrafted items. For additional information about this year’s event or to donate an item, email Cindi Hunter at firstname.lastname@example.org. Proceeds benefit DebRA. For more information, click on this event link.
“What Were We Talking About?” East Coast Premiere (Spring Lake, NJ)
This original play written by Linda Stoval, Gretchen Wheeler, Gale Alexander and Vickie Cawthra leaves its Wyoming stomping grounds to make its east coast debut at Spring Lake Community Theatre Saturday and Sunday, Oct. 26-27. All proceeds benefit DebRA of America. To purchase tickets, go to this link. For more information, click on this event link.
ING NYC Marathon, Team DebRA (New York, NY)
Support or run as a part of a team raising funds to support the EB-focused organization in the world’s largest marathon Sunday, Nov. 3. All proceeds benefit DebRA of America. To check out who is participating in the campaign or to donate, go to this link. For more information, click on this event link.