What To Expect From Us in 2013.
Happy New Year, everybody!
Each year, we set out to make EB Resource a more valuable resource for our community’s members, and 2013 is no exception.
We have already made it our mission to feature more voices on the blog and even include several guest blogs throughout the year from some of the people who are featured here in interviews. So look for that in the months ahead.
We will be asking more thought-provoking questions of members in EB Resource's Facebook and Twitter communities to generate greater dialogue among members, and we invite all of them to do the same. This is your forum as much as it is ours to provide the latest news and information but also to support one another. Often, that means seeking feedback from other families going through similar situations. We want you to feel completely at home to ask other members their recommendations for anything, whether it is EB-friendly footwear brands, fundraiser tips or strategies for school-related issues.
We also plan to promote more regularly upcoming EB events and fundraisers as well as any industry or medical community events related to its study or research. However, this is one area where we need your help! Many times, we get the news about an event’s existence too late after a blog has posted, and we cannot spread the word as much as we would have liked. If you know of any upcoming events, are planning your own or will be attending one, send us the details by email as soon as you have them (firstname.lastname@example.org) or tell us about it at Facebook or Twitter so we may include it within our next quarterly blog about future events. The way to success for any of these awareness or fundraising campaigns is through word of mouth, and we want to do our part to lend a loud voice in that effort!
So these are some of the things that we have planned for our blog, Facebook and Twitter pages in 2013, but we are always looking for suggestions on ways you think we could to add greater value to this community. What else would you like to see EB Resource tackle – blog topics you’d like to read about, voices you wish to hear from or other ways you would like to interact with us and with others in the EB community? We welcome your suggestions. Email us or leave us a comment here with your input.
And may you and your family have a beautiful new year!