Giving Thanks by Giving Back

At this time of year, many of us reflect on that for which we are most grateful. For some EB patients and their families going through an especially troubling time, this can be difficult. To members of our community, let’s use this opportunity to show gratitude for the advice, education and support each of us has been fortunate to receive from other families, those care specialists who have sincerely invested themselves in our lives, and groups like DebRA, EBMRF, EB Friends and more. How can we do that? We can pay it forward by sharing that knowledge and support with others now facing similar challenges.

So ask yourself: what is the best way I can show appreciation for the information and support my family has been able to receive and how can I take that support and information and pass it along to others who could benefit, too? Jot down your own thoughts here and make a plan to get started – today or this weekend!

In a way, we consider holidays like Thanksgiving a special gift, because they promptly remind us that no matter how bad things may get, we have also experienced a richness that other families and those not diagnosed with the disease don’t always get to know: a sense of community and genuine appreciation for the time spent together with loved ones.

Have a safe and happy Thanksgiving!

Sources:
Blogging Your Story: Five Things You Should Know (EB Resource)
Social Media for EB Storytelling (EB Resource)
Planning Your EB Awareness Campaign, (EB Resource)
100 Links for EB Families (EB Resource)

Related Posts:
Doing Our Part: What Can You Share?
Making the Hunt for Good Info Easier
The Importance of Connecting

2 comments

  1. AMYKENDALL says:

    xxx

  2. AMYKENDALL says:

    I really try to pay it forward by helping parents w/ younger ones…anytime…I try to be really honest,but also add some positives,also, especially with new parents, I only give info. as I think they can handle it…..this is a disorder that as a parent, one can only accept a little at a time…Now on a positive note…I also tell the good things that my Kendall can do and has accomplished,try very hard to staY POSITIVE…one example this year…& I might mention I was the only one who would sign the permission slip …. on a class fieldtrip, Kendall climbed the rockwall at the YMCA 10 FEET UP….what an accomplishment…so very proud …& FYI didn’t get one mark.KENDALL~13~RDEB…thats my SSSGIRL….so for other parents out there push,push,push your kids…don’t hold them back……My Shout out goes to Cincinatti Childrens EB Cinic Docs,Nurses,&Surgeons….Kendall would not be here today without them…I could never THANK them enough for their time & dedication.HUGS 2 ALL ~Amy LANHAM-BAILEY