*The information provided in this blog is not medical advice and is not intended to, and does not, replace the advice provided by your health care professional. Always seek advice from your licensed healthcare professional in regards to your healthcare needs.
The holidays are often a time when co-workers, friends and family look to lavish loved ones with special tokens of their affection, presents to offer something fun, practical or meaningful. For EB families, however, there are important guidelines that gift-buyers should probably be aware of before purchasing a gift for your little one at the holidays or for a birthday. Consider this blog a useful link you can share with others to minimize any awkwardness but still pass along some important and timely information.
When asked for gift ideas for your child with EB, don’t be reluctant to share tips like these in order to ensure your child’s safety and comfort and look to your fellow members in the EB community for online vendors and stores in the marketplace that may carry EB-friendly brands, too. For those of us who live in the EB universe, some of these tips may seem like common sense but to someone who doesn’t experience day-to-day EB care, these can be invaluable pointers that they likely would not think of on their own.
When purchasing apparel for someone with EB, it’s best to avoid any scratchy snaps, buttons or fasteners, such as zippers or binding drawstrings, because these can irritate delicate skin.
As for fabrics, look for plush, soft materials, such as cotton, velvet and velour and avoid hard, textured or itchy fabrics like denim, corduroy or some wool pieces. An irritating fabric can lead to the person feeling compelled to scratch or rub their skin which may puncture fragile skin layers and create or prolong open wounds.
- Also, be sure to purchase either loosely-fitting clothing (as long as it won’t brush and irritate skin when it moves) or apparel that is made to fit properly and not too tight, keeping in mind the added thickness that bandaging can contribute. Fabric that has to stretch across skin can also add too much pressure to sensitive areas which may already have blisters or other lacerations.
Depending on the age of the child, use caution when selecting toys with pointy or rough edges that could slip in delicate hands. Wherever possible, go with softer, vinyl or plush toys with smooth edges or cushioning.
Avoid games that encourage other contestants to touch, poke or press against other players, such as Twister.
- Use caution when purchasing any cooking-related toys that might encourage kids to create or bake food items that can be ingested as these may or may not agree with your child’s digestion or throat if they suffer from painful swallowing, often experienced by those with EB.